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CURRENT RESEARCH

Epidemiology of Autoimmune Liver Diseases: A Proposal to Study Concurrent Autoimmune Diseases for Patient Education

Background. Approximately 38 percent of people with an autoimmune liver disease have at least one other concurrent autoimmune disease, and research shows that the most prevalent concurrent autoimmune diseases are IBD, Sjögren’s syndrome, thyroiditis,  rheumatoid arthritis, Celiac disease, and ulcerative colitis, diabetes type 1.

Objectives. Researchers of autoimmune liver disease epidemiology call for more rigorous studies to determine the prevalence of concurrent autoimmune diseases. Although narrowing down prevalence rates will help health care providers in the long run, patients still need education on the chances of developing a concurrent autoimmune disease, including possible warning signs of symptoms, to lessen the severity of the AD by receiving treatment as soon as possible. And helping patients to recognize symptoms of concurrent ADs may help determine prevalence rates.

Methods. Through a five-year three-phase study, the project team plans to develop the study protocol for the collaborative studies, implement the retrospective and prospective prevalence, incidence, risk factor and patient education studies, analyze the data and report the findings. Data collection instruments will include a modified version of the US National Health and Nutrition Examination Study (NHANES IV) questionnaire, and data analysis software includes SAS and Atlas.ti.

Note: This is not a "real" research proposal in that I am not, at this time, submitting it to a funding agency. It is simply a school assignment for an Epidemiology of Chronic Disease class. The literature review, however, will be helpful as a resource for those of us with autoimmune liver disorders.

Papers
Jackie Donaldson-Lopez
2008 Epidemiology of Autoimmune Liver Diseases: A Proposal to Study Concurrent Autoimmune Diseases for Patient Education. College Park, MD: University of Maryland. PDF


Profile of Prince George's County, Maryland

I compiled and analyzed data on Prince George's County, Maryland, including sociocultural demographics, education patterns, county government resources, health services, environmental issues, and crime and violence.

Papers
Jackie Donaldson-Lopez
2008 Profile of Prince George's County, Maryland. College Park, MD: University of Maryland. PDF

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2008 The Students of Prince George's County Maryland. Fact Sheet. College Park, MD: University of Maryland. PDF

Freidenberg, Judith, Gail Thakur, Jackie Donaldson-Lopez, and Jenna Hall
2008 Perceived Inclusion of Contemporary Immigrants to Suburban U.S.: The Immigrant Life History Project. Paper presented at the Society for the Anthropology of North America/American Ethnological Society Conference, Wrightsville Beach, NC, April 3.


PAST RESEARCH

The Anthropology of Health Education: Developing, Implementing, and Evaluating an Intervention

Over the past year, I developed, implemented, and evaluated a culturally-appropriate pilot health education intervention at a community health clinic for an ethnically diverse low-income population of Prince George's County, MD. My methods included identifying potential clients with indicators of high cholesterol, hypertension, and/or diabetes, developing curricula and offering both individual counseling sessions and group workshops.

Through eliciting the clients’ explanatory models of their chronic diseases and their typical diet and physical activity behaviors, the individual counseling sessions and workshops aimed to improve participants’ dietary, physical activity, and cardiovascular and/or diabetes self-care behaviors.

A very small percentage of targeted clients attended the workshops, so the process evaluation aimed to assess clients’ actual and providers’ perceived barriers to accessing the workshops. Clients reported that structural barriers prevented them from attending, while providers reported that they perceived clients’ barriers as sociocultural.

The evaluation provides evidence supporting the continuation of the workshops, as well as several recommendations for removing barriers to accessing the workshops.

Papers
Donaldson-Lopez, Jackie
2008 The Anthropology of Health: Developing, Implementing, and Evaluating a Culturally-Appropriate Health Education Intervention. Master of Applied Anthropology thesis, Department of Anthropology, University of Maryland. PDF

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2007 Evaluation Report on Barriers to Accessing Health Education Workshops: Client and Provider Perceptions. (Unpublished). College Park, MD: University of Maryland. PDF

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2007 Developing an Intervention at a Community Clinic: How Latinas View Their Gestational Diabetes Care and Treatment. (Unpublished). College Park, MD: University of Maryland. PDF


Capital Black Belt Project: An Intervention

Obesity often leads to subsequent health conditions such as hypertension, diabetes, heart disease, and stroke, as shown in several published studies and reports.  Many health studies have also shown that prevalence of obesity and related conditions is higher in African Americans than in whites. 

Although it is known that some of the most effective preventative measures for obesity include increased physical activity, reduced intake of sodium, fats, and sugar, and an increased intake of fiber, many reports on dietary interventions indicate a lack in awareness of the social and cultural determinants of diet and exercise beliefs and practices. 

The focus of this study is to assess the complexity of these sociocultural beliefs and practices of diet and exercise, and to implement an appropriate intervention program through churches in the African American community in Seat Pleasant, MD, as these churches are able to reach large numbers of people and have historically played significant roles within African American communities.

Papers
Donaldson, Jackie, Doneby Smith, Caine Francis, Alyson Waite, and Priya D'Souza
2006 Capital Black Belt Project: An Intervention. (Unpublished). College Park, MD: University of Maryland. PDF


Health Education Intervention for Latinas with Gestational Diabetes and Their Families in Langley Park, Prince George's County, MD

I developed a health education intervention for Latinas with gestational diabetes in a culturally-diverse, low income area of Prince George's County, MD. The intervention not only focused on education the women, but also involved their families to strengthen support for the women, as well as provide prevention education, since children of Latina gestational diabetics are 50 to 70 percent more likely to develop diabetes themselves.

Papers
Donaldson, Jackie
2007 Health Education Intervention for Latinas with Gestational Diabetes and Their Families in Langley Park, Prince George's County, MD. (Unpublished). Washington, DC: George Washington University. PDF


The Community Health Clinic Experience: How Staff Deal with Daily Pressures

When I began this qualitative methods project in Fall 2006, I anticipated being able to speak directly to patients in community health clinics to understand whether or not patients’ cultural beliefs and behaviors influenced their care and treatment. From the literature and from personal experience overhearing patient-provider exchanges in an emergency waiting room, I had a preconceived notion that Latina/o patients and their providers experienced challenges in communicating with each other. Despite several attempts to strike up conversations in community health clinics with the women waiting to be taken to exam rooms, I was only able to informally interview one teen-aged patient who has only visited a community health clinic once since emigrating to the U.S. a year ago. Instead, I focused on learning more about community health clinic staff experiences.

Observing and interviewing patients without an introduction or common ground proved challenging. Conversely, speaking with and observing community health clinic staff, especially at the Spanish Catholic Center in Langley Park, MD, proved an eye-opening experience. From discussions in semi-structured and formal interviews, staff members find working at a community health clinic to be challenging but immensely fulfilling. They consider themselves to be dedicated and caring people who, despite funding issues, lack of resources, and low salaries, provide quality health care and treatment for their community members who are uninsured and underserved. For most people I interviewed, working at a community health clinic fulfilled their personal mission. They felt they provided quality health care, although two providers, including a physician assistant and nurse disagreed.

I’d like to conduct more semi-structured interviews with community health clinic staff. I have more questions about the challenges of working in and I’d like to learn more about working with and serving patients and their needs. And I’d like to observe patients in exam rooms and interview them about their health care experiences. Ultimately, I believe my research can be used to help develop “best practices" for community health educators. This is still very much a new idea for me, but one I plan on testing out through the next year and a half.

If I had the time and capability, or worked on a team project, I would be very interested in comparing the experience patients have in community health clinics and private practices or hospitals. I did get a taste of the differences two health professionals had in working at both levels, and from their discussion, it appeared as though the differences were striking, with quality of health care and treatment being a primary division, and funding and resources being contributing factors. Although ethnicity was not discussed, these two health professionals were white, middle-class educated women who do not live in the same community where they practiced at their community health clinics. I am interested in exploring this disparity more, as well as interviewing patients who have also had experiences in the community and private sectors.


 See my Resume page for my related work experience.